George
Dimiris, Ph.D,
director of the Missouri Telehospice
Project initiative at the University of Missouri in collaboration
with 5 hospices in Missouri discusses his work, including
outreach to ethnic minority groups, who have been traditionally
underserved in hospice, and other challenges of his program:
We
are working both with urban and rural populations. Unfortunately,
as it is the case in other states, ethnic minority populations
do not utilize hospice services to a great extent and we
work with the existing client pool of our collaborating
agencies. The challenges of implementing telehospice in
rural populations include the lack of infrastructure (e.g.,
some homes do not have phone lines) and the lack of professionals
in the area. On the other hand, hospice workers see a greater
benefit in using videophones as an initial screening tool
before an unexpected visit.
We
are currently conducting pilot studies to determine this
hypothesis (which disease group has the highest satisfaction
scores and lowest burden in using the technology). We have
been working so far with cancer patients and their caregivers.
Our eligibility criteria included any cancer diagnosis and
enrollment in the hospice agency and mental state that allows
the understanding of the consent form and the decision about
participation in the study. The next step is, for us, to
look more carefully at the demographic and clinical data
of our patients. We have designed the intervention to target
primarily caregivers of cancer patients. The aim is that
the use of videophones will decrease caregiver anxiety and
distress. We are also looking at caregiver and patient acceptance
and satisfaction.